Today was rough. He was miserable and mad 😡. There was no making him happy. He didn’t want anything except to be left alone but there was lots of poking and prodding and moving and tweaking. This morning he developed a bad rash from his knees to his neck and has been itching like crazy all day. It’s 8:30pm as I write this and he JUST got some medicine that is giving him some relief. When we got moved to the regular room, he got quarantined to the room. They’re concerned about this pneumonia and what kind of bacteria it is... something like that. Either way we weren’t allowed to leave the room and everyone that came had to have a gown and mask 😷. I’m still not 💯 sure why that’s going on but between regular cardiac surgery stuff and the rash and pneumonia he was OVER. IT. He finally fell asleep and it looked like he was resting. The good news is that they took his chest tube out. That was pretty painful for him and while it was a major ordeal to get it out, we are glad we are down to an Iv and some pacing wires (These are wires that go into his chest to be able to pace his heart should there me an arrhythmia problem).
A couple hours after he fell asleep he woke up and seemed a little better. We got him up and walked him around the room and got him to play with a race track and car they brought him to play with. Somewhere in that mix he made a 180! He started smiling. He laughed when talking to Yaya and the girls on FaceTime. Talk about music to my ears! He’s been sitting up in a chair looking out the window and watching Cars3. He decided he was hungry and ate half of Rob’s pizza 🍕 instead of his dinner and drank a bunch of water. Winning!
What started as a rough day sure finished a great one! I’ve sure missed that smile for the last couple days! He is crushing all the goals set for him. 24-48 hours with breathing tube turned in to 6 hours. 4-5 days in CICU turned into 2. Chest tube for at least a week turned into 2 days... I can’t wait to see what he does tomorrow!
Keep those prayers coming. They are working! God is so so good.
For tomorrow:
>Pray that he can be cleared to leave this room. There’s a play room two doors down and he’s dying to get in there!
> pray for the girls and Yaya. Emily has the flu and Livvy is really missing us! I hate seeing my babies cry. Especially when I can’t get my hands on them and hold them.
> pray for Henry’s lungs to clear up and his pain to diminish. Coughing sure is painful when you just had major surgery like this.
>pray for continued rest and healing.
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