Grateful

What a  24 hours it has been.

We kissed our baby boy goodbye aNd prayed with all our might that God would hold him close and guide the hands of the doctors. Thank you for joining us in that prayer.

Henry did amazing during surgery. It took less time than anyone thought it would.  He was on heart/lung bypass a much shorter time than anyone thought, which is great. The shorter the time on bypass the better. The surgeon was extremely pleased with how the repair went. He fixed his tricuspid valve  and repaired his atrial wall and found a hole that they hadn’t seen between his two chambers. I got to see some of the echo images last night and it’s SOOOO amazing.

Henry is in a LOT of pain. He was supposed to keep the breathing tube in 24-48 hours but we got it around around midnight last night. It was a tough fight but he did it. Talk about awful to be a part of. He can’t talk very well due to his airways being irritated as you might imagine. I did hear through a pretty pitiful whimper “mommy I have so many ouchies!”  So thankful he’s pushing through it all. He was supposed to be in CICU 4ish days but there’s talk of moving him out tonight or tomorrow! What a brave boy we have! We will see how today goes. Last night was rough. I’m so proud of him,  he’s doing what he needs to even though he’s miserable. I don’t think I could do as well.

It’s truly heartbreaking for a mama’s heart ❤️ . I’m so very glad we are on this side of it but this is certainly not for the faint of heart. I’ve wanted to scoop him up and hold him so badly but ... we Are overflowing with gratitude for all of this. Listening to the doctors, nurses, fellows, residents talk about his case really puts things in perspective.  The complexity and rarity of his CHD make it a great learning experience for everyone. This hospital is a teaching hospital (For Harvard medical school in case you didn’t know). We are so lucky 🍀 and blessed beyond measure. So grateful and are so fortunate to have the opportunity to come here and have him seen by the best of the best.

So. Prayers today that his pain will be managed. Prayers for a touch of pneumonia they think he’s got to be responsive to the antibiotics. Prayers he can keep on being brave and prayers for a restful day for all.

Thanks again for your love and support.

With a grateful ❤️
Jenn